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Patrick Deegan

Cambridge University Hospitals NHS Foundation Trust · GB
Area of research
Physiology · Epidemiology
Research interest
Research interests include Medicine, Enzyme replacement therapy, Internal medicine, Disease, Adverse effect, and Fabry disease.
h-index
citations
2,416
works
28
NIH funding
primary concept
email

Recent publications

Evaluation of Lyso-Gb1 as a biomarker for Gaucher disease treatment outcomes using data from the Gaucher Outcome Survey
Orphanet Journal of Rare Diseases 2025cited by 8position: middledoi
104-week efficacy and safety of cipaglucosidase alfa plus miglustat in adults with late-onset Pompe disease: a phase III open-label extension study (ATB200-07)
Journal of Neurology 2024cited by 24position: middledoi
A phase <scp>III</scp>, open‐label clinical trial evaluating pegunigalsidase alfa administered every 4 weeks in adults with Fabry disease previously treated with other enzyme replacement therapies
Journal of Inherited Metabolic Disease 2024cited by 14position: middledoi
Twelve Years of the Gaucher Outcomes Survey (GOS): Insights, Achievements, and Lessons Learned from a Global Patient Registry
Journal of Clinical Medicine 2024cited by 12position: middledoi
Long-Term Treatment of Gaucher Disease with Velaglucerase Alfa in ERT-Naïve Patients from the Gaucher Outcome Survey (GOS) Registry
Journal of Clinical Medicine 2024cited by 4position: firstdoi
Efficacy and Safety of Avalglucosidase Alfa in Patients With Late-Onset Pompe Disease After 97 Weeks
JAMA Neurology 2023cited by 51position: middledoi
Head-to-head trial of pegunigalsidase alfa versus agalsidase beta in patients with Fabry disease and deteriorating renal function: results from the 2-year randomised phase III BALANCE study
Journal of Medical Genetics 2023cited by 42position: middledoi
Venglustat, an orally administered glucosylceramide synthase inhibitor: Assessment over 3 years in adult males with classic Fabry disease in an open-label phase 2 study and its extension study
Molecular Genetics and Metabolism 2022cited by 48position: firstdoi
Development and validation of Gaucher disease type 1 (GD1)-specific patient-reported outcome measures (PROMs) for clinical monitoring and for clinical trials
Orphanet Journal of Rare Diseases 2022cited by 34position: middledoi
Switching between Enzyme Replacement Therapies and Substrate Reduction Therapies in Patients with Gaucher Disease: Data from the Gaucher Outcome Survey (GOS)
Journal of Clinical Medicine 2022cited by 14position: middledoi
eP149: Safety and efficacy of pegunigalsidase alfa, every 4 weeks, in Fabry disease: Results from the phase 3, open-label, BRIGHT study
Genetics in Medicine 2022cited by 7position: middledoi
Safety and efficacy of avalglucosidase alfa versus alglucosidase alfa in patients with late-onset Pompe disease (COMET): a phase 3, randomised, multicentre trial
The Lancet Neurology 2021cited by 178position: middledoi
The International Collaborative Gaucher Group GRAF (Gaucher Risk Assessment for Fracture) score: a composite risk score for assessing adult fracture risk in imiglucerase-treated Gaucher disease type 1 patients
Orphanet Journal of Rare Diseases 2021cited by 16position: firstdoi
Early indicators of disease progression in Fabry disease that may indicate the need for disease-specific treatment initiation: findings from the opinion-based PREDICT-FD modified Delphi consensus initiative
BMJ Open 2020cited by 37position: middledoi
Gaucher Disease in Bone: From Pathophysiology to Practice
Journal of Bone and Mineral Research 2019cited by 200position: lastdoi
Comprehensive Cancer-Predisposition Gene Testing in an Adult Multiple Primary Tumor Series Shows a Broad Range of Deleterious Variants and Atypical Tumor Phenotypes
The American Journal of Human Genetics 2018cited by 72position: middledoi
Exploring the patient journey to diagnosis of Gaucher disease from the perspective of 212 patients with Gaucher disease and 16 Gaucher expert physicians
Molecular Genetics and Metabolism 2017cited by 79position: middledoi
Comprehensive Rare Variant Analysis via Whole-Genome Sequencing to Determine the Molecular Pathology of Inherited Retinal Disease
The American Journal of Human Genetics 2016cited by 480position: middledoi
Oral pharmacological chaperone migalastat compared with enzyme replacement therapy in Fabry disease: 18-month results from the randomised phase III ATTRACT study
Journal of Medical Genetics 2016cited by 385position: middledoi
Reported outcomes of 453 pregnancies in patients with Gaucher disease: An analysis from the Gaucher outcome survey
Blood Cells Molecules and Diseases 2016cited by 32position: middledoi
A Phase 3 Trial of Sebelipase Alfa in Lysosomal Acid Lipase Deficiency
New England Journal of Medicine 2015cited by 242position: middledoi
Enzyme replacement and substrate reduction therapy for Gaucher disease
Cochrane Database of Systematic Reviews 2015cited by 116position: middledoi
Sebelipase alfa over 52weeks reduces serum transaminases, liver volume and improves serum lipids in patients with lysosomal acid lipase deficiency
Journal of Hepatology 2014cited by 97position: middledoi
A Phase 3, multicenter, open-label, switchover trial to assess the safety and efficacy of taliglucerase alfa, a plant cell-expressed recombinant human glucocerebrosidase, in adult and pediatric patients with Gaucher disease previously treated with imiglucerase
Blood Cells Molecules and Diseases 2014cited by 59position: middledoi
Clinical Effect And Safety Profile of Recombinant Human Lysosomal Acid Lipase in Patients With Cholesteryl Ester Storage Disease
Hepatology 2013cited by 117position: middledoi
Long term safety and clinical activity of SBC-102, a recombinant human lysosomal acid lipase (rhLAL), in patients with late onset LAL deficiency
Molecular Genetics and Metabolism 2013cited by 0position: middledoi
Characteristics of type I Gaucher disease associated with persistent thrombocytopenia after treatment with imiglucerase for 4–5 years
British Journal of Haematology 2012cited by 41position: middledoi
Initial Human Experience with SBC-102, a Recombinant Enzyme Replacement Therapy in Adults with Lysosomal Acid Lipase Deficiency
Molecular Genetics and Metabolism 2012cited by 7position: middledoi

Grants

No grants ingested yet.

Frequent collaborators

· 8 papers (2017–2024)Özlem Göker-Alpan · National Human Genome Research Institute8 papers (2016–2024) · 6 papers (2012–2024)Ari Zimran · Hebrew University of Jerusalem5 papers (2012–2024)Neal J. Weinreb · University of Miami5 papers (2012–2022) · 5 papers (2014–2025)Gregory M. Enns · Palo Alto University4 papers (2012–2014) · 4 papers (2017–2024)Ari Zimran · Hebrew University of Jerusalem4 papers (2014–2025)Vĕra Malinová · Johannes Gutenberg University Mainz4 papers (2012–2014)Ida Vanessa Döederlein Schwartz · Case Western Reserve University4 papers (2016–2024)Shoshana Revel‐Vilk · Hebrew University of Jerusalem4 papers (2022–2025)Manisha Balwani · University of Miami4 papers (2012–2014)Heather Lau · Yale University4 papers (2016–2024) · 4 papers (2012–2014)Jaco Botha · Novartis (Switzerland)4 papers (2022–2025) · 4 papers (2012–2014) · 4 papers (2012–2014)Eugene Schneider · Ionis Pharmaceuticals (United States)4 papers (2012–2014)David G. Warnock · University of Alabama at Birmingham3 papers (2020–2024)