Area of research
Genetics · Speech and Hearing
Research interest
Research interests include Disease, Medicine, Chronic pain, Patient-Reported Outcomes Measurement Information System, Psychology, and Quality of life (healthcare).
Assessing Psychosocial Risk and Resilience to Support Readiness for Gene Therapy in Sickle Cell Disease
The influence of perceived racial bias and health-related stigma on quality of life among children with sickle cell disease
AAAPT Diagnostic Criteria for Acute Sickle Cell Disease Pain
Development and validation of the self-reported PROMIS pediatric pain behavior item bank and short form scale
Patient Perspectives on Gene Transfer Therapy for Sickle Cell Disease
Qualitative Evaluation of Pediatric Pain Behavior, Quality, and Intensity Item Candidates and the PROMIS Pain Domain Framework in Children With Chronic Pain
Psychometric Properties of the Psychosocial Assessment Tool-General in Adolescents and Young Adults With Sickle Cell Disease
Medication Adherence Among Pediatric Patients With Sickle Cell Disease: A Systematic Review
Design Joins the Battle Against Sickle‐Cell Disease