Area of research
Public Health, Environmental and Occupational Health · Genetics
Research interest
Research interests include Medicine, Newborn screening, Permission, Public health, Genomic medicine, and Medical education.
Data-driven consideration of genetic disorders for global genomic newborn screening programs
Gene‐targeted therapies: Towards equitable development, diagnosis, and access
Addressing underrepresentation in genomics research through community engagement
How collaboration between bioethicists and neuroscientists can advance research
Population-Based Screening of Newborns: Findings From the NBS Expansion Study (Part One)
Prenatal genetic counselors' perceptions of the impact of abortion legislation on counseling and access in the United States
Public involvement in the governance of population-level biomedical research: unresolved questions and future directions
Comparison of Video, App, and Standard Consent Processes on Decision-Making for Biospecimen Research: A Randomized Controlled Trial
Including ELSI research questions in newborn screening pilot studies
Genomic newborn screening: public health policy considerations and recommendations
Evaluating Harms in the Assessment of Net Benefit: A Framework for Newborn Screening Condition Review
Prenatal Education of Parents About Newborn Screening and Residual Dried Blood Spots
Parental Permission for Pilot Newborn Screening Research: Guidelines From the NBSTRN
Practical Barriers and Ethical Challenges in Genetic Data Sharing
Public Attitudes Regarding the Use of Residual Newborn Screening Specimens for Research
Retention and Research Use of Residual Newborn Screening Bloodspots
Assessing public attitudes on the retention and use of residual newborn screening blood samples: A focus group study