Area of research
Pediatrics, Perinatology and Child Health · Public Health, Environmental and Occupational Health
Research interest
Research interests include Childhood Cancer Survivors' Quality of Life, Palliative Care and End-of-Life Issues, Ethics and Legal Issues in Pediatric Healthcare, and Family Support in Illness.
<i>“We’re going to get through this together”:</i> patient, parent, and oncologist recommendations for providing emotional support in advanced childhood cancer
Factors Affecting Hospice Use Among Adolescents and Young Adult Cancer Patients
Patient, Family, and Clinician Perspectives on End-of-Life Care Quality Domains and Candidate Indicators for Adolescents and Young Adults With Cancer
Barriers to Optimal End-of-Life Care for Adolescents and Young Adults With Cancer: Bereaved Caregiver Perspectives
Facilitators Associated With Building and Sustaining Therapeutic Alliance in Advanced Pediatric Cancer
Thinking ahead: Parents’ worries about late effects of childhood cancer treatment
Bereaved Caregivers Perspectives of Negative Communication Experiences Near the End of Life for Adolescents and Young Adults with Cancer
Agreement Between Child Self-report and Caregiver-Proxy Report for Symptoms and Functioning of Children Undergoing Cancer Treatment
Validity and Reliability of the Pediatric Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events
Expanding construct validity of established and new PROMIS Pediatric measures for children and adolescents receiving cancer treatment
Communication during childhood cancer: Systematic review of patient perspectives
Unrealistic parental expectations for cure in poor‐prognosis childhood cancer
End‐of‐life care among adolescent and young adult patients with cancer living in poverty
A Research Agenda for Communication Between Health Care Professionals and Patients Living With Serious Illness
Child and adolescent self-report symptom measurement in pediatric oncology research: a systematic literature review
Cognitive Interview-Based Validation of the Patient-Reported Outcomes Version of the Common Terminology Criteria for Adverse Events in Adolescents with Cancer
Communication preferences of pediatric cancer patients: talking about prognosis and their future life
Eliciting the child's voice in adverse event reporting in oncology trials: Cognitive interview findings from the Pediatric Patient‐Reported Outcomes version of the Common Terminology Criteria for Adverse Events initiative
Development of quality indicators for transition from pediatric to adult care in sickle cell disease: A modified Delphi survey of adult providers
Association of Actual and Preferred Decision Roles With Patient-Reported Quality of Care
The role of families in decisions regarding cancer treatments
Patient beliefs that chemotherapy may be curative and care received at the end of life among patients with metastatic lung and colorectal cancer
Young Adult Perspectives on a Successful Transition from Pediatric to Adult Care in Sickle Cell Disease
Symptom Prevalence in Lung and Colorectal Cancer Patients
Patients' Expectations about Effects of Chemotherapy for Advanced Cancer
End-of-Life Care Discussions Among Patients With Advanced Cancer
Reasons Why Physicians Do Not Have Discussions About Poor Prognosis, Why It Matters, and What Can Be Improved