Area of research
Pediatrics, Perinatology and Child Health · Sociology and Political Science
Research interest
Research interests include Childhood Cancer Survivors' Quality of Life, Family Support in Illness, Grief, Bereavement, and Mental Health, and Palliative Care and End-of-Life Issues.
"Not Only Has She Survived, But She Lives a Happy Life": Parents' Perspectives and Experiences of a Novel Disease-Modifying Therapy for Spinal Muscular Atrophy in Sweden.
Web‐Based Psychoeducational Intervention to Improve Family Caregiver Preparedness in Specialized Palliative Home Care: A Randomized Controlled Trial
Navigating the Border - How Swedish Physicians Approach Palliative Care Referrals in Oncology
Web-based support for spouses of patients with life-threatening illness cared for in specialized home care - A feasibility study.
Experiences of being a severely ill parent of dependent children receiving care at home: Hopes and challenges.
Parents' experiences of handling oral anticancer drugs at home: 'It all falls on me …'.
Family cohesion predicts long-term health and well-being after losing a parent to cancer as a teenager: A nationwide population-based study.
Quality of life in mothers and fathers of children treated for acute lymphoblastic leukaemia in Sweden, Finland and Denmark.
Referral of patients with cancer to palliative care: Attitudes, practices and work-related experiences among Swedish physicians.
Using Communication Tools to Explore Young Siblings' Experiences of Having a Brother or Sister with Pediatric Palliative Care Needs.
Family bonding as a result of the family talk intervention in pediatric oncology: Siblings' experiences.
Children's experiences of the family talk intervention when a parent is cared for in palliative home care-A feasibility study.
Is the family talk intervention feasible in paediatric oncology? An evaluation of a family-based psychosocial intervention.
Talking about death when a parent with dependent children dies of cancer: A pilot study of the Family Talk Intervention in palliative care.
Children's Views Are Not Taken Into Account in Accordance With Article 12 of the United Nations Convention on the Rights of the Child in the Family Talk Intervention When a Parent Is Cared for in Palliative Care.
The grief and communication family support intervention: Intervention fidelity, participant experiences, and potential outcomes.
Breaking the silence about illness and death: Potential effects of a pilot study of the family talk intervention when a parent with dependent children receives specialized palliative home care.
Expert survey on coverage and characteristics of pediatric palliative care in Europe - a focus on home care.
Psychotropic medication use in parents of survivors of adolescent cancer: A register-based cohort study.
Communication about diagnosis and prognosis-A population-based survey among bereaved parents in pediatric oncology.
Outcomes of the grief and communication family support intervention on parent and child psychological health and communication.
Sources of social support and its importance for cancer-bereaved spouses and their minor children: A cross-sectional study.
End-of-Life-Related Factors Associated with Posttraumatic Stress and Prolonged Grief in Parentally Bereaved Adolescents.
Parents' advice to other parents of children with spinal muscular atrophy: Two nationwide follow-ups.
Parents experiences of handling oral anticancer drugs at home: “It all falls on me …”
Family bonding as a result of the family talk intervention in pediatric oncology: Siblings’ experiences
Feasibility and preliminary efficacy of guided internet-delivered cognitive behavioral therapy for insomnia after the loss of a child to cancer: Randomized controlled trial.
The Family Talk Intervention in palliative home care when a parent with dependent children has a life-threatening illness: A feasibility study from parents' perspectives.
Family Communication and Psychological Health in Children and Adolescents Following a Parent's Death From Cancer.
Children's and adolescents' experiences of living with cancer.