Area of research
Pulmonary and Respiratory Medicine · Psychiatry and Mental health
Research interest
Research interests include Cystic Fibrosis Research Advances, Adolescent and Pediatric Healthcare, Child Nutrition and Feeding Issues, and Palliative Care and End-of-Life Issues.
Wellness in the modulator era: An observational study of the impact of CFTR modulator therapy on the well-being of people with cystic fibrosis
Standards for the care of people with cystic fibrosis; establishing and maintaining health
Neuropsychiatric adverse effects from CFTR modulators deserve a serious research effort
Models of Palliative Care Delivery for Individuals with Cystic Fibrosis: Cystic Fibrosis Foundation Evidence-Informed Consensus Guidelines
Maintaining mental health and function for the long run in cystic fibrosis
International Committee on Mental Health in Cystic Fibrosis: Cystic Fibrosis Foundation and European Cystic Fibrosis Society consensus statements for screening and treating depression and anxiety
Cystic Fibrosis Foundation and European Cystic Fibrosis Society Survey of cystic fibrosis mental health care delivery