Area of research
Genetics · Pediatrics, Perinatology and Child Health
Research interest
Research interests include Hemoglobinopathies and Related Disorders, Prenatal Screening and Diagnostics, Iron Metabolism and Disorders, and Palliative Care and End-of-Life Issues.
Assessment of Patient and Caregiver Attitudes and Approaches to Decision-Making Regarding Bone Marrow Transplant for Sickle Cell Disease
Primary caregiver decision‐making in hematopoietic cell transplantation and gene therapy for sickle cell disease
Management of Chronic Pain in Adults Living With Sickle Cell Disease in the Era of the Opioid Epidemic
A Qualitative Study of Chronic Pain and Self-Management in Adults with Sickle Cell Disease
Presence of pain on three or more days of the week is associated with worse patient reported outcomes in adults with sickle cell disease
Experiences and Decision Making in Hematopoietic Stem Cell Transplant in Sickle Cell Disease: Patients' and Caregivers' Perspectives
Proponent or collaborative: Physician perspectives and approaches to disease modifying therapies in sickle cell disease